Hospital social work in acquired brain injury care: patients' and kin' experiences and perspectives on psychosocial support

Abstract

Purpose Acquired brain injuries (ABI) have a profound impact on both individuals and their families, making psychosocial support a crucial component of neurorehabilitation. Understanding this support is essential for enhancing the services provided by healthcare social workers (HSWs). This study aimed to explore the experiences of individuals with ABI and their next of kin regarding psychosocial support, with a particular focus on the support received from HSWs. Method A total of 33 interviews were conducted, 23 with individuals with ABI and 10 with next of kin. Data were analyzed using qualitative content analysis. Results Participants with ABI and their next of kin valued the support provided by HSWs in addressing challenges related to medical, emotional, financial, and social needs. The importance of informational support-such as explanations of the medical condition and treatment options-was emphasized, alongside instrumental support that helped individuals navigate complex welfare systems. Conclusions While counselling and crisis management are essential, the informational and practical support provided by HSWs should not be regarded as secondary. The need for support varies significantly-both between individuals and over time-highlighting the importance of tailoring interventions to each person's unique circumstances in order to achieve truly person-centered care.